My wife has been feeling good lately—healthy.
I write that with a smile on my face—then quickly knock on wood.
If you read the first article I ever wrote for WeAreCaregivers, you know that there haven’t been many times my wife has felt like this. Mainly, since her diagnosis with a rare autoimmune disorder in 2009, she’s wrestled with fatigue, exhaustion, pain and frustration.
Of course, there have been times when she’s felt better, when she hasn’t been as tired or sore, when her rash hasn’t been as predominant—but those periods haven’t lasted long, and they weren’t like this.
How is she feeling this summer?
She has been doing research in a university city in another part of our state, while I hold down the fort at our home. She’s on her own, taking care of everything. And that has me thinking about the roller-coaster that is caregiving. I am well aware that for some people caregiving isn’t a roller-coaster. There are no “up” periods. There isn’t any chance that the person they care for is going to start feeling better. But for many caregivers—if patients enjoy remission, their roles change and they’re no longer needed as they once were.
Maybe that doesn’t sound like a big deal, but when your identity has become so wrapped up in providing love and care in one way, it can be difficult to accept that you’re no longer needed in that way anymore.
For me, it began with the dishes.
Dishes have just been one of my things. I started doing the dishes when each plate felt like a 10-pound brick in my wife’s hands. Since then, I’ve become one of the fastest, most thorough dishwashers east of the Mississippi. But when my wife started feeling better, she’d kindly do the dishes and for whatever reason it bothered me. It bothered me so much I’d make a point to get to the sink first after a meal.
Why? Because without the dishes—without providing care in this way, and other ways—the dynamic of our relationship changes however slightly.
Don’t misunderstand. I love my wife; I’m thrilled she is feeling well; I share her pride in the work she’s doing, now.
She’s conducting important research this summer with a scientist she profoundly respects. She’s living on her own. She doesn’t need me to do the dishes. And, the dynamic of our relationship has changed. Like a lot of caregivers whose intense routines suddenly evaporate—I’m disoriented. As happy and relieved as I am that she’s feeling better, I still feel awkward when she does something I would normally do; when I talk with her on the phone and she’s just finished cleaning her apartment, prepared dinner, handled some bills and caught up with our friends over the phone.
So here’s my question as a young, inexperienced caregiver: How do you ride this roller-coaster?
I’m looking for your guidance here, so don’t let me down! How do you transition after those intense periods of providing care, from doing everything (or practically everything)? How do you let go of those things? How do you still feel needed?
Please, leave a comment, share this column on Facebook or email me at WeAreCaregivers@gmail.com
I could certainly use the help.
Meanwhile … I think I’ll go wash the dishes.
PAUL HILE is a writer, editor and social-media expert with ReadTheSpirit online magazine. His columns—written from the perspective of millions of younger caregivers—occasionally appear in this WeAreCaregivers section of our magazine. CLICK HERE to read all of Paul Hile’s columns on caregiving.